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Well, it's been a few years since I updated everyone on my adventures in controlling/curing Multiple Sclerosis. If you'd like to catch up, just search the archives for "acupuncture" to find the last nine installments.
What brought this up was the fact that past articles have been getting some attention lately and reminded me that I should give folks whatever information I have accumulated over the past seven years to use and/or pass on to others similarly afflicted.
To briefly summarize, on 1 April 2009, at 4:39p, I had a sudden wave of powerful flu-like symptoms come over me, to where I barely had the energy to climbs a flight of stairs. I lay down for a few minutes, hoping it would pass. When I opened my eyes, everything was washed out, as if overexposed. Overnight, the situation deteriorated into complete and profound blindness, not to mention an overwhelming feeling of exhaustion and other milder symptoms. Keep in mind that in the previous 48 years, I had never had any indication that I might get struck with Multiple Sclerosis.
I spent the next week in the hospital getting mega-doses of prednisone, a rather powerful corticosteroid, to reduce swelling around the optic nerves. I spent the next five weeks at home popping piles of pills (lovely alliteration that) and around week 3, my vision started to return a bit at a time, which was joyful, but the steroids were causing extremely painful burning in my legs, to the point where the slightest touch on my skin sent waves of pain throughout.
By the time I was weaned off the steroids, I had regained about 20% of my vision. I went from being an award-winning director/cameraman/editor who could tell the difference between every single chip on a PMS color chart, to seeing the world as an Impressionist painting in gray-scale. At this point, my right eye is nearly blind and my right ear screams most of the time. My left eye and ear are a bit better. I have also lost feeling in the middle three toes of both feet and my sense of balance is shot to hell.
So, in the last seven years, in addition to retasking my skills and talents, I have been seeking various treatments and possible cures for my condition, and sharing the experience with readers who might be able to help others with the information.
The series of articles began with my first experience with acupuncture. My thinking was the since my optic nerves (and likely auditory as well) were literally dead in the centers, perhaps stimulating the nerves directly would offer some relief.
I underwent twice-a-week treatments of 15 minutes each for three months. Each treatment involved inserting hair-thin needles in the various nerves of my face and head, including directly under my eye balls, which was a bit disconcerting. The needles were then connected to a "thumper" that sent a mild electric pulse directly to the nerves.
This is actually not very painful when done right. If the needle goes directly into the nerve, there is no pain and the pulse feels like someone tapping you. If it goes into the muscle, it stings like a wasp and the pulse makes the muscle twitch rather painfully.
The net result was that I gained significant brightness at the end of each session, though not much clarity, and the effect faded over 48 hours. I did, however, regain a significant amount of color vision, which has persisted now for seven years without fading.
There was some benefit for hearing and touch, as well, though it has slowly gone down over the years. I should probably try another round of acupuncture to see if I can gain anything at this late stage.
Very long story short, over the past few years, I have had an increase of burning sensations in my toes and occasionally hot, stabbing pain at various nerve endings. Additional problems included leg cramps and insomnia. I had resigned myself to these issues as just part of the progression of the disease, until one day I stumbled across an article on magnesium deficiency.
Turns out every one of my complains are symptoms of magnesium deficiency. I immediately started taking 200 mg twice a day (morning and evening). Within two days, I began sleeping better, the leg cramps stopped and the burning, stabbing pains have gone down to much more tolerable levels. After two weeks of steady intake, I have much more energy and better concentration thanks to better sleep.
Lesson Learned: don't accept anything as being incurable. It may have nothing to do with other health issues, so always investigate possible cures.
Another ongoing experiment is the use of radio frequencies, as pioneered by Rife, Lakhovsky and Tesla. One of our long-time readers and correspondents came to visit us two years ago, just as I was coming down with back-to-back typhus, amoebic dysentery and dengue fever. Needless to say, I wasn't much company, but he was kind enough to make a "permanent loan" of two RF generator units from Russia.
I have been using them anywhere from two to five days a week, and have programmed them for various types of therapies. I sadly cannot report any miraculous healings, but I can say that since I started using them, I haven't had so much as a head cold. I have also noted a decrease in joint pain, a legacy of many injuries over the years, especially in my knees and wrists. I can't lay everything at the RF alter, since I have also been taking chondroitin and glucosamine for several years, but I do (subjectively) feel like there has been an improvement since using the RF generators.
I have done some research on a number of elements and minerals, as they pertain to treating MS. I have focused on dietary sources, as I thinkthe natural minerals are more easily absorbed and effective than in supplements. I have also found a number of suggestions for foods to avoid, which can be summed up in this article. According to the list, I think the saturated fat warning is bullshit, because the problem is the fat layer around nerves that act as an insulator, and I won't stop eating steak for any reason. I don't drink milk except in coffee. I don't drink sodas, especially avoiding artificial sweeteners like the plague all my life.
One thing I have found, at least for me, is that I cannot eat cassava root. This may not be an issue in North America and Europe, but in much of the rest of the world, it is as common as potatoes. If I eat any amount of it, within 30 minutes my sight dims, I get a headache and muscles start twitching uncontrollably, which last for about 24 hours. You'll need to do your own tests, but I won't touch the stuff with a 10-foot pole.
My final addition to the list, at least for now, is 75% or higher chocolate (aka-dark chocolate). To many people, this is quite bitter, but I actually prefer this form of chocolate to the sweet, buttery confections. Eating a few grams for me reduces the random aches and pains I've come to expect with MS, and produces a pleasant relaxed feeling. I keep some next to the bed for sleepless nights and it generally helps quite a bit.
So that's it for now. I am continuing my inquiries, especially into stem cell treatments. I am rather excited by the reports of success in treating nerve damage, particularly to the optic nerve. Should the opportunity arise to give it a try, I would find it very hard to resist at this point. I would do just about anything to be able to drive a car and take decent photos again.
Head's up!
PS: I swear Drudge reads my blog. Articles keep popping up shortly after my posts go live. Take for instance this one on chocolate being the new party drug. Not only that, but if you read down to the bottom, you find out that raw chocolate is high in magnesium. Well slap me silly. I had no idea...
Here Thar Be Monsters!
From the other side of the argument to the other side of the planet, read in over 149 countries and 17 languages. We bring you news and opinion with an IndoTex® flavor. Be sure to check out the Home Site. Send thoughts and comments to bernard atradiofarside.com, and tell all your friends. Note comments on this site are moderated to remove spam. Sampai jumpa, y'all.
Showing posts with label multiple sclerosis. Show all posts
Showing posts with label multiple sclerosis. Show all posts
31.5.16
5.6.11
Adventures In Acupuncture III
This is part 3 of an on-going series of articles about the use of acupuncture in treating the effects of multiple sclerosis, especially blindness. See Part 1 here and Part 2 here. The standard Western medical approach gave no hope for recovery, and the use of life-long drugs (with distasteful side-effects) offered a ‘possible’ protection from further attacks.
It's on a small back street near Gaja Mada, an unassuming white building in the Dutch colonial style. You enter the main doors into a large waiting room painted entirely white, with a large covered courtyard directly ahead. To the right is the check-in counter. You hand over your treatment card, pay Rp.40,000 (~$5) and wait your turn.
There are about 7 or 8 sin she who practice here. Some are very popular. Mine is not, since her bedside manner is, well, chilly at best. I don't care. I just want to see again.
It's a yayasan, or non-profit organization. If you bring a letter from your Pa RT that says you are poor, you will be treated for free. There are old and young, stroke patients on gurnies, people with various injuries getting pain relief, a diverse cross-section of the population. Some arrive in expensive Mercedes, others by bajaj and motorcycle. I've made friends with a couple of the regulars.
I'm called up and enter the long ward on the left side of the building. It's lined with curtained cubicles and looks something like one of those old war movies in the hospital scene. I sit at a wooden desk and the sin she, her name is Tjoe (Chew), asks a few questions. "How are your eyes?" "Any problems?" "How about your feet?" She hold up some objects and asks me what color they are. If it's blue or yellow, no problem...greens and reds are a little more difficult.
Tjoe takes my pulse and blood pressure, then asks me to stick out my tongue. Common practice to look for evidence of a stroke, but also has some information about my general health. This is my fifth visit and she seems to be warming up slightly, which means she actually cracks a smile when I make a joke.
Next, I'm led to one of the curtained cubicles, where a basic wood-framed bed with a fresh, thin cotton sheet and a small pillow. Tjoe comes in with a tray full of needles. I try not to look at it, since I am no fan of needles under any circumstances. Childhood trauma, I guess. She swabs the back of my head first and pokes a needle into the dorsal nerve that runs up the back of the skull. It's rather uncomfortable.
Then I lie down and Tjoe begins the ritual. First, a needle on either side of the base of my skull. Those aren't too bad, though the sensation is rather unnerving, pardon the pun. Two more in the top of my head. Two over each eye, two at the root of my nose. Two about mid-way down my nose. One at the corner of each eye. One under each eye. One in each hand, between the thumb and forefinger. Sometimes there's a third between the right ring-finger and pinky...though not today. The ones in my feet have moved. They are now on the outside of my calves about an inch or so above the ankles. Most of the needles don't bother me too much, but the ones in my face are not pleasant, especially the ones at the corners of my eyes.
The assistant comes in with a battery pack and starts wiring up the needles in my face and neck, and today she adds a wire to the one in my right hand. She then begins to turn on the juice one at a time, beginning with the one on the right side of my neck. I have to confirm that I feel each one come online. The ones in my nose make the end of my nose tingle and the muscles in my head jump in rhythm with the alternating pulses.
I close my eyes and try to relax as best I can. I can feel the pulsing all over my head, but if I let my mind wander, it becomes kind of a pleasant background. If I concentrate on it, it can get rather uncomfortable. It goes on for about 15 to 20 minutes.
This is followed by the most unpleasant part of the whole thing...swabbing the needle entry-points with alcohol. There's a slight amount of bleeding, especially at the facial points. It stops after a few seconds. The assistant adds up the needles and asks for an additional Rp. 5,000, for more than 10. At that point, I'm free.
So, what have I noticed? Well, my stopped-up sinuses are wide open and my sense of smell is supercharged. Don't know if I'm thankful or not for that, since Jakarta is a wealth of odors, not all of which are pleasant. The tinnitus has gone down overall, though some days are worse than others. The muscle spasms in my lower legs have nearly stopped. I still get mild cases after a lot of walking, but sleeping at night is much easier, since the leg muscles aren't jumping all night.
A significant amount of sensation has returned to the middle three toes on both feet. I had lost nearly all sensory input from those six toes. I still had motor control, but with no feeling, I couldn't tell where my toes where without looking. I could also drop a brick on them and only notice the pressure, but no pain unless I looked at them and had a pscho-somatic response. Thought they are not fully restored, I can certainly attest that I feel them again.
As for my eyes, I am getting a lot more color response across my full field of view. My peripheral vision is starting to get greens and reds, though certain hues register much better than others. My central vision is regaining colors, as well, though quite a bit slower. I also seem to have a more difficult time focusing on medium and distant objects. There also seems to be quite a bit more 'fog' in my central vision, though the peripherals are starting to clear up. Not dramatically, but certainly an improvement.
My sense of balance seems to come and go. After some treatments, I feel like I could walk a tight-rope, but after others, not as good. In all, though, it is an improvement over pre-treatment, when I was doing an old man shuffle to keep from toppling over.
The sin she tells me to be patient, that acupunture takes time, and the treatment must be tweaked and tuned over time. I assure her that after two years of being blind with no hope from pill-popping medicine, a couple of months is nothing. That I can see more colors is plenty to celebrate, by itself.
I addition to the acupuncture, I have continued my twice-a-month reflexology, which is kind of a mix between massage, acupressure and Greco-Roman wrestling. It starts literally with the tip of my toes and finishes with the top of my head, and in the course of two hours, every nerve gets worked over. When done, my whole body is jangling like a freshly rung bell. It can be quite painful, since one of the purposes is to break ganglion cysts, otherwise known as bible cysts. The masseuse uses his thumb knuckle to literally grind the little buggers until they pop, which has me climbing out of my skin most of the time. No this is not some executive stress-relief session, this is serious therputic massage, and I do get a general benefit from it in every part of my body connected to nerves.
I have also continued my vitamin regimen. The following in my daily pill-popping:
It's on a small back street near Gaja Mada, an unassuming white building in the Dutch colonial style. You enter the main doors into a large waiting room painted entirely white, with a large covered courtyard directly ahead. To the right is the check-in counter. You hand over your treatment card, pay Rp.40,000 (~$5) and wait your turn.
There are about 7 or 8 sin she who practice here. Some are very popular. Mine is not, since her bedside manner is, well, chilly at best. I don't care. I just want to see again.
It's a yayasan, or non-profit organization. If you bring a letter from your Pa RT that says you are poor, you will be treated for free. There are old and young, stroke patients on gurnies, people with various injuries getting pain relief, a diverse cross-section of the population. Some arrive in expensive Mercedes, others by bajaj and motorcycle. I've made friends with a couple of the regulars.
I'm called up and enter the long ward on the left side of the building. It's lined with curtained cubicles and looks something like one of those old war movies in the hospital scene. I sit at a wooden desk and the sin she, her name is Tjoe (Chew), asks a few questions. "How are your eyes?" "Any problems?" "How about your feet?" She hold up some objects and asks me what color they are. If it's blue or yellow, no problem...greens and reds are a little more difficult.
Tjoe takes my pulse and blood pressure, then asks me to stick out my tongue. Common practice to look for evidence of a stroke, but also has some information about my general health. This is my fifth visit and she seems to be warming up slightly, which means she actually cracks a smile when I make a joke.
Next, I'm led to one of the curtained cubicles, where a basic wood-framed bed with a fresh, thin cotton sheet and a small pillow. Tjoe comes in with a tray full of needles. I try not to look at it, since I am no fan of needles under any circumstances. Childhood trauma, I guess. She swabs the back of my head first and pokes a needle into the dorsal nerve that runs up the back of the skull. It's rather uncomfortable.
Then I lie down and Tjoe begins the ritual. First, a needle on either side of the base of my skull. Those aren't too bad, though the sensation is rather unnerving, pardon the pun. Two more in the top of my head. Two over each eye, two at the root of my nose. Two about mid-way down my nose. One at the corner of each eye. One under each eye. One in each hand, between the thumb and forefinger. Sometimes there's a third between the right ring-finger and pinky...though not today. The ones in my feet have moved. They are now on the outside of my calves about an inch or so above the ankles. Most of the needles don't bother me too much, but the ones in my face are not pleasant, especially the ones at the corners of my eyes.
The assistant comes in with a battery pack and starts wiring up the needles in my face and neck, and today she adds a wire to the one in my right hand. She then begins to turn on the juice one at a time, beginning with the one on the right side of my neck. I have to confirm that I feel each one come online. The ones in my nose make the end of my nose tingle and the muscles in my head jump in rhythm with the alternating pulses.
I close my eyes and try to relax as best I can. I can feel the pulsing all over my head, but if I let my mind wander, it becomes kind of a pleasant background. If I concentrate on it, it can get rather uncomfortable. It goes on for about 15 to 20 minutes.
This is followed by the most unpleasant part of the whole thing...swabbing the needle entry-points with alcohol. There's a slight amount of bleeding, especially at the facial points. It stops after a few seconds. The assistant adds up the needles and asks for an additional Rp. 5,000, for more than 10. At that point, I'm free.
So, what have I noticed? Well, my stopped-up sinuses are wide open and my sense of smell is supercharged. Don't know if I'm thankful or not for that, since Jakarta is a wealth of odors, not all of which are pleasant. The tinnitus has gone down overall, though some days are worse than others. The muscle spasms in my lower legs have nearly stopped. I still get mild cases after a lot of walking, but sleeping at night is much easier, since the leg muscles aren't jumping all night.
A significant amount of sensation has returned to the middle three toes on both feet. I had lost nearly all sensory input from those six toes. I still had motor control, but with no feeling, I couldn't tell where my toes where without looking. I could also drop a brick on them and only notice the pressure, but no pain unless I looked at them and had a pscho-somatic response. Thought they are not fully restored, I can certainly attest that I feel them again.
As for my eyes, I am getting a lot more color response across my full field of view. My peripheral vision is starting to get greens and reds, though certain hues register much better than others. My central vision is regaining colors, as well, though quite a bit slower. I also seem to have a more difficult time focusing on medium and distant objects. There also seems to be quite a bit more 'fog' in my central vision, though the peripherals are starting to clear up. Not dramatically, but certainly an improvement.
My sense of balance seems to come and go. After some treatments, I feel like I could walk a tight-rope, but after others, not as good. In all, though, it is an improvement over pre-treatment, when I was doing an old man shuffle to keep from toppling over.
The sin she tells me to be patient, that acupunture takes time, and the treatment must be tweaked and tuned over time. I assure her that after two years of being blind with no hope from pill-popping medicine, a couple of months is nothing. That I can see more colors is plenty to celebrate, by itself.
I addition to the acupuncture, I have continued my twice-a-month reflexology, which is kind of a mix between massage, acupressure and Greco-Roman wrestling. It starts literally with the tip of my toes and finishes with the top of my head, and in the course of two hours, every nerve gets worked over. When done, my whole body is jangling like a freshly rung bell. It can be quite painful, since one of the purposes is to break ganglion cysts, otherwise known as bible cysts. The masseuse uses his thumb knuckle to literally grind the little buggers until they pop, which has me climbing out of my skin most of the time. No this is not some executive stress-relief session, this is serious therputic massage, and I do get a general benefit from it in every part of my body connected to nerves.
I have also continued my vitamin regimen. The following in my daily pill-popping:
- 2000 mg of vitamin C
- Nature's Bounty Vizion 20/20 x 1
- Royal Jelly 500 mg x 1
- Coral Calcium 174 mg (w/D-3) x 1
- Cinnamon 1000 mg x 1
- Milk Thistle 175 mg x 1
- Vitamin E 400 IU x 1
To this, I will add Goji berry extract, which has a long reputation in Chinese medicine as being beneficial for eyes and nerves, as well as Gingko Biloba, which also has benefits for nerves and brain.
In conclusion, after 5 sessions, I am seeing some benefits, with a few (like sensation in my toes) being rather remarkable. I have noticed some benefit to hearing, smell and balance, and muscle spasms are slowing down a good bit. My vision is a bit brighter and more colorful, which is a minor miracle. We shall see what the long-term benefits are.
In my research, the consensus seems to be that 10 sessions is the minimum to really begin seeing major improvements, so I'm half-way there now. I have seen enough already to be encouraged and I will continue, at least for the foreseeable future. My research has also shown, and others have told me, that acupuncture is best when combined with other modalities. So, I am careful to keep MSG out of my diet, maintain a vitamin and mineral regimen, use reflexology, and soon I will be adding two common herbal supplements that are known for their benefits to eyes and nerves.. i will, of course, continue to report here weekly on any and all effects, good, bad or indifferent, so that my experience can be useful to others who may need it, since western medicine only offers endless pills and little hope for cures in the case of multiple sclerosis.
My wife has also taken some photos from the treatments, so if I can ever get her to download them onto my computer, then I'll post those in future, as well.
If anyone has specific questions, please feel free to drop a note to the address at the top of the page. I'll be happy to share the resources I've collected and point you in the direction of folks who can help you find more.
Sampai jumpa from Needle Park!http://augenguy.blogspot.com/2011/05/adventures-in-acupuncture-ii.html
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